Log In   ·   Become A Member

ADRC Presents Art For Alzheimer's Celebrating Paint At The Parrish

Lee Fryd

Bobbie Braun - whose great grandparents founded The Alzheimer's Disease Resource Center - knows what it's like to care for a loved one with the disease. Her grandmother died 30 years ago of it and her 92 year old father is incapacitated by the disease. "When he fell on the field," she told us of the family cause, "I picked up the flag." Like this self-proclaimed "Long Island Girl," the ADRC is based in the Island and the City. It recently opened an office on Southampton's Flying Point Road. We caught up with Braun at the charity's Art for Alzheimer's Celebrating Paint At The Parrish Party, honoring Harry and Barbara Ludlow from Fariview Farms, LLC.

The ADRC is the go-to for local families in need who are coping with Alzheimer's Disease and other dementias. "We are the ones actually caring for people," Braun told us. "There are legal issues, medical issues, Medicaid/Medicare issues, how to find quality care, whether to move someone into a nursing home. It takes at least ten or 12 people to care for one individual who has Alzheimer's. So there is a profound need for care. And we provide all of it pro bono for those who cannot pay themselves."

They also fund research. "Over the many years, we have been involved with stem cell research organizations that are seeking some kind of an answer to neurodegenerative diseases," Braun said. "What we have discovered in the past 30 years - from what I call the Jurassic Period is that the only thing that creates quality of life and stability - within a family scenario and within the individual that suffers himself - is therapy. It's socialization, nutrition, love and attention." Music therapy, riding therapy and the program at the Parrish, getting sufferers to express themselves through art, are examples of ways to keep minds engaged and slow the progression of the disease.

Braun said they are currently treating about 75,000 people throughout Long Island and 4,000 here on the East End. "By word of mouth, we have created six support groups. We're trying to bring caregivers out here and create a chain of understanding and awareness so that people are not left in the dark, struggling on their own."

Bobbie said her father, in his prime, the "genius who created the Long Island Message Center and Radio Call Company of Long Island," today has been blinded by the disease, incapacitated, bedridden and must be fed by hand. "One of the first questions everyone asks me when I'm going to visit my father, is, 'Does he know you?' I've had to evolve an answer to that over the past six years: 'Yes he does, in his own way.' My understanding of reality is transformed by this disease, because of his peacefulness and his contentedness. When he shows some kind of agitation, he's cared for by love. Alzheimer caregivers are angels on earth and dedicated servants. We at the ADRC seek to provide that for all those in need."

Mary Ann Malack-Ragona, MBA, is Executive Director / CEO of the Alzheimer's Disease Resource Center.

For more information, visit www.adrcinc.org.

Related Articles:

Be the first to comment on this article. (Just fill out the form below)

Submit Your Comment

Please note, you are not currently logged in. Your comment will be submitted as a guest.
To submit your comment as a member, please click here.
Your Name:
* Comments will be reviewed and posted in a timely fashion
* All fields are required
What color is a firetruck?
(For spam prevention, thanks)
East End Tick Control
The East End's only New York State licensed dedicated tick and mosquito control specialists!

Hamptons Carpet One Floor & Home
We pay less,and so do you.With over 1,000 stores in our buying group, we can get the lowest prices from the best flooring manufacturers and pass the savings on to you.Visit our other locations: Hamptons Carpet One Floor & Home, 675 North Sea Road,Southampton, NY 11968

CP Complete- Landscape Design & Construction
Paul Guillo And Chris Hall Two Of The Most Respected Names In The Community Together, they are partners in CP Complete. They bring their years of experience and integrity to creating and renovating luxury backyards.

Hamptons luxury real estate specialist for 33 years, Andrea Ackerman offers outstanding expertise in the field.
Hamptons luxury real estate specialist for 33 years, Andrea Ackerman offers outstanding expertise in the field. Trusted, experienced and successful, Andrea has solidified herself as the go-to broker of the Hamptons and a wholehearted advocate for her clients. A pioneer in the real estate industry on the East End of Long Island, she is driven by her passion for the business. Andrea is based in the Bridgehampton office of Brown Harris Stevens as a licensed real estate associate broker and consultant. Formerly, a principal partner and Senior Director at Brown Harris Stevens, Andrea now assists in developing their corporate strategy for the Hamptons region, advising other brokers and sales associates, as well as being one of the top producers and listors.

Brown Harris Stevens is the quintessential luxury real estate firm, with a history of leadership and a culture of professionalism and discretion dating back to 1873
Brown Harris Stevens is the quintessential luxury real estate firm, with a history of leadership and a culture of professionalism and discretion dating back to 1873. At every level of Brown Harris Stevens, you will find highly experienced, knowledgeable experts, single-mindedly devoted to your interests and your satisfaction. With offices in the Hamptons, New York City, Palm Beach, and Miami our brokers are exceptional - leading the field with the quality of their work ethic, their outstanding success rate and the sheer quantity of their transactions.